Established in 1987, Edinburgh Myalgic Encephalomyelitis Self-Help Group (edmesh) has been supporting people with Myalgic Encephalomyelitis (M.E.) in Edinburgh and the Lothians for 35 years in 2022.
What is Myalgic Encephalomyelitis?
M.E. is a debilitating disease characterised by severe, disabling fatigue and post-exertional malaise. Sometimes referred to as Chronic Fatigue Syndrome (CFS) or Post-Viral Fatigue Syndrome (PVFS), M.E. is estimated to affect 250,000 people in the UK. 90% of people with M.E. are forced to reduce or stop work because of their illness and the worst affected 25% are housebound. There is currently no known cure or diagnostic test for M.E although complete or partial recovery is possible.
Learn more about Myalgic Encephalomyelitis.
Supporting people with M.E./CFS
edmesh works to advance the health and wellbeing of people with M.E./CFS and foster a sense of community by providing support, information and friendship.
In a effort to combat the isolation felt by many people with M.E./CFS, we run a range of events, including a monthly café meeting, where people can meet and share experiences.
We help our members by sharing information on our website and in a quarterly newsletter. Our financial assistance provides relief to those in need as a result of their illness.
Between 2009 and 2012 our Therapies for M.E. project trained a number of our members to become complementary therapists.
Raising Awareness
We are committed to being a voice for people with M.E./CFS and maintain strong links with other M.E./CFS groups in Scotland and the UK. Our open meetings feature speakers from the medical profession and M.E./CFS community and our quarterly newsletter is sent to MSPs and healthcare representatives across Scotland. We are a member of a number of charitable organisations.
Support edmesh
Want to support our work? Why not become an edmesh member? edmesh members pay a reduced price on tickets for our events and receive our quarterly newsletter.
Want to help the local M.E./CFS community? Find out how you can volunteer your time.
Your support helps us to do more for the M.E./CFS community in Edinburgh and the surrounding areas. Learn how we use the money we raise.
Discover how you can support edmesh.
Our supporters
edmesh is a charitable organisation funded by members’ subscriptions, and occasional donations from grant-making trusts. It is run by a small Board of Trustees, most of whom have M.E./CFS, or care for someone who does.
edmesh is registered with the Office of the Scottish Charity Regulator.