Established in 1987, Edinburgh Myalgic Encephalomyelitis Self-help Group (edmesh) has been supporting people with Myalgic Encephalomyelitis (M.E.) in Edinburgh and the Lothians for over a quarter of a century.

What is Myalgic Encephalomyelitis?

M.E. is a debilitating disease characterised by severe, disabling fatigue and post-exertional malaise. Sometimes referred to as Chronic Fatigue Syndrome (CFS) or Post-Viral Fatigue Syndrome (PVFS), M.E. is estimated to affect 250,000 people in the UK. 90% of people with M.E. are forced to reduce or stop work because of their illness and the worst affected 25% are housebound. There is currently no known cure or diagnostic test for M.E although complete or partial recovery is possible.

Learn more about Myalgic Encephalomyelitis.

Supporting people with M.E.

edmesh works to advance the health and wellbeing of people with M.E. and foster a sense of community by providing support, information and friendship.

In a effort to combat the isolation felt by many people with M.E., we run a range of events, including a monthly café meeting, where people can meet and share experiences.

We offer a range of services for people with M.E. including Yoga classes, a postal library of books about M.E. and a quarterly newsletter. Our financial assistance provides relief to those in need as a result of their illness.

Between 2009 and 2012 our Therapies for M.E. project trained a number of our members to become complementary therapists.

Learn more about our services.

Raising Awareness

We are committed to being a voice for people with M.E. and maintain strong links with other M.E. groups in Scotland and the UK. Our open meetings feature speakers from the medical profession and M.E. community and our quarterly newsletter is sent to MSPs and healthcare representative across Scotland. We are a member of a number of charitable organisations.

Support edmesh

Want to support our work? Why not become an edmesh member? edmesh members gain access to a range of services, pay a reduced price on tickets for our events and receive our quarterly newsletter.

Want to help the local M.E. community? Find out how you can volunteer your time.

Your support helps us to do more for the M.E. community in Edinburgh and the surrounding areas. Learn how we use the money we raise.

Discover how you can support edmesh.

Our supporters

edmesh is a charitable organisation funded by members’ subscriptions, and occasional donations from grant-making trusts. It is run by a small board of trustees, most of whom have M.E., or care for someone who does.

edmesh is registered with the Office of the Scottish Charity Regulator.