Edinburgh M.E. Self help Group

Note: These sites are provided for information only; edmesh does not endorse any opinions expressed in them.
General ME websites
M.E. Support - http://www.mesupport.co.uk
Louise Sargent’s site features information on ME and related conditions, and articles on managing different aspects of the illness.
Sleepydust - http://www.sleepydust.net
Set up by Claire Williams, who has since recovered from ME, this site [...]

Lothian Centre for Integrated Living (LCIL)
Norton Park
57 Albion Road
Edinburgh EH7 5QY
Tel: 0131 475 2350
Web: www.lothiancil.org.uk
A user led organisation established in 1991 to provide a range of practical services to disabled adults in the Lothian region. It is managed and staffed by a partnership of disabled and non-disabled people.
Scottish Disability Equality Forum (SDEF)
12 Enterprise House
Springkerse Business [...]

The following organisations offer help and advice regarding benefit applications for those based in Edinburgh and the Lothians:
The Advice Shop
City of Edinburgh Council Welfare Rights Service
85-87 South Bridge, Edinburgh EH1 1HN
Tel: 0131 225 1255
Website: www.edinburgh.gov.uk/internet/a-z/AZ_advice_shop
Trained advisers are employed by Edinburgh City Council, with some limited knowledge/experience of M.E. but as this is a drop-in service, [...]

Parents and young people
M.E. in children can present very different problems from that in adults. Also sometimes diagnosed as Chronic Fatigue Syndrome or Post Viral Fatigue Syndrome, it will have an effect on education and developing friendships and can make for particular difficulties in the teenage years.
There is no specific local group for young people [...]

Action for M.E.
Third Floor, Canningford House, 38 Victoria Street, Bristol BS1 6BY
Tel: 0845 123 2380 (local rate) or 0117 927 9551(Mon - Fri: 9am - 5pm)
Email: admin@afme.org.uk
Website: www.afme.org.uk and www.a4me.org.uk (young people)
Telephone Support Service: 0845 123 2314 (local rate)
11.00am to 1.00pm Monday to Friday (except Bank Holidays)
M.E. Association
7 Apollo Office Court, Radclive Road, Gawcott, Buckinghamshire, [...]