Unfortunately this event has now been cancelled. For more information please contact the organiser at the email address below. Gig 4 M.E. Date: Saturday 13th June Time: 7.30pm Duration: Approximately 3 hours Venue: Auchterarder Parish Church, 24 High St, Auchterarder, Perthshire, PH3 1DF (about an hour from central Edinburgh). The venue is seated. Tickets: £8 [...]
Sadly, we have to report the death of edmesh member Alan Lear, who passed away at the end of 2008. A funeral service was held on Tuesday 13th January 2009 and was attended by a number of edmesh members and committee members. Alan was a writer and regular contributor to edmesh‘s newsletter. His humorous articles [...]
The judicial review into the NICE guidelines for CFS/ME begins today. These are proposed guidelines for the care and treatment of ME sufferers in England and Wales. (Scotland will be getting its own CFS/ME guidelines later in the year.) The NICE guidelines were branded unfit for purpose by a number of ME charities, chiefly for [...]
The Disablement Income Group Scotland (DIG), based at the Shore in Edinburgh, has had to close down due to lack of funding following changes in grant allocations. DIG has operated as a charity offering advice on welfare benefits and all sorts of other financial matters for disabled people for many years. Unfortunately they have been [...]
edmesh were there at the launch of Nasim Marie Jafry’s novel The State of Me last night. There was a great turnout of people to hear read an extract from the beginning of the book and answer questions about it. She explained that it had taken her 10 years to write – because, as an [...]
There still appears to be no one available to take a lead on ME/CFS for Lothian Health – as at mid August. This means that the Report based on our patient survey questionnaires has still not been published. We are very concerned that the important information and recommendations in the Report should not be buried. [...]
Fibromyalgia and ME expert Dr Jacob Teitelbaum of Maryland, USA will be giving a free talk in Glasgow as part of his visit to the UK. Date: Thursday 21st August Time: 1.30pm Venue: The Pearce Institute, 840 860 Govan Road, Govan, Glasgow (tel: 0141 445 6007) Dr Teitelbaum, who suffered from CFS and Fibromyalgia himself, [...]
Nasim Marie Jafry will be launching and signing copies of her debut novel The State of Me at Waterstones, George Street, Edinburgh, on Wednesday 20 August. The event begins at 7.30pm. Tickets are free, available from the branch or by calling 0131 225 3436. The novel follows the adventures of Helen, a student who becomes [...]
