Edinburgh M.E. Self help Group

Sir Peter Spencer from Action for ME has asked if 6 edmesh members would like to volunteer to try out a support group meeting using Skype.

The Scottish election on 5th May is a great opportunity to raise awareness of M.E. and CFS among the Parliamentary candidates who will be campaigning and asking for our vote over the next few weeks. It gives us all a chance to tell our personal stories and ask the politicians what they are going to [...]

Nottingham New Theatre presents a new piece by writer Lizzy Bourne, based on her experience with a close friend who suffers from M.E. Only One Wing revolves around a young girl named Esther who is confined to bed. In order to escape, Esther retreats into her imagination, creating a fairy story which echoes her fears [...]

The fifth Invest in ME international ME/CFS conference will be held in London on 24 May 2010, as part of ME Awareness Month. The conference speakers will cover topics including XMRV, enteroviruses and gene expression in ME/CFS. This is an exciting time for ME/CFS research; there will be edmesh representation at the event. A report [...]

Edinburgh M.E. Self-Help Group (edmesh) is delighted to announce that we have been successful in an application to secure funding from the Self Management Fund for Scotland which is jointly funded by the Long Term Conditions Alliance Scotland (LTCAS) and the Scottish Government. edmesh is one of only 16 successful applicants. The grant will be [...]

Paths for All and Scottish Natural Heritage have started work on a project to look at ‘Improving Website Approaches for Promoting and Marketing Paths’. More and more people are turning to the Internet to get the information they need to access paths around Scotland. At the moment the provision is very disjointed and unco-ordinated. As [...]

Katie MacLaren has successfully completed the half marathon in the Great Scottish Run in 2 hours 21 mins. Katie was running on behalf of edmesh – you can still contribute via the donate page. edmesh will let Katie know how much her run has raised from donations.

UNFORTUNATELY, THIS EVENT HAS BEEN CANCELLED. IF YOU BOUGHT A TICKET, YOU WILL BE CONTACTED BY THE HUB FOR A REFUND. PLEASE IGNORE THE INFORMATION BELOW! The Edinburgh Festival of Politics is staging a free event on Thursday 20 August which may be of interest. Event title: Past Present & Future – The Developing Role [...]

The Scottish Public Health Network is currently undertaking a needs assessment for CFS/ME, and would like to hear from anyone suffering from the condition. The main aims of the project are to: Establish the incidence of CFS/ME in Scotland Describe what services are currently available for CFS/ME sufferers and their effectiveness Ascertain any new services [...]

The Believe in ME report has now been published by NHS Lothian. A printed version has been sent out to everyone on the edmesh mailing list, and it has also been distributed by Lothian Health to health professionals and planners. The report can be downloaded here. The file is in pdf format and is 1.92 [...]