The fifth Invest in ME international ME/CFS conference will be held in London on 24 May 2010, as part of ME Awareness Month.
The conference speakers will cover topics including XMRV, enteroviruses and gene expression in ME/CFS.
This is an exciting time for ME/CFS research; there will be edmesh representation at the event. A report on the [...]
Edinburgh M.E. Self-Help Group (edmesh) is delighted to announce that we have been successful in an application to secure funding from the Self Management Fund for Scotland which is jointly funded by the Long Term Conditions Alliance Scotland (LTCAS) and the Scottish Government.
edmesh is one of only 16 successful applicants.
The grant will be [...]
Paths for All and Scottish Natural Heritage have started work on a project to look at ‘Improving Website Approaches for Promoting and Marketing Paths’.
More and more people are turning to the Internet to get the information they need to access paths around Scotland. At the moment the provision is very disjointed and unco-ordinated. As part [...]
Katie MacLaren has successfully completed the half marathon in the Great Scottish Run in 2 hours 21 mins. Katie was running on behalf of edmesh - you can still contribute via the donate page. edmesh will let Katie know how much her run has raised from donations.
UNFORTUNATELY, THIS EVENT HAS BEEN CANCELLED. IF YOU BOUGHT A TICKET, YOU WILL BE CONTACTED BY THE HUB FOR A REFUND.
PLEASE IGNORE THE INFORMATION BELOW!
The Edinburgh Festival of Politics is staging a free event on Thursday 20 August which may be of interest.
Event title: Past Present & Future – The Developing Role of the [...]
The Scottish Public Health Network is currently undertaking a needs assessment for CFS/ME, and would like to hear from anyone suffering from the condition.
The main aims of the project are to:
Establish the incidence of CFS/ME in Scotland
Describe what services are currently available for CFS/ME sufferers and their effectiveness
Ascertain any new services required, with a view [...]
The Believe in ME report has now been published by NHS Lothian. A printed version has been sent out to everyone on the edmesh mailing list, and it has also been distributed by Lothian Health to health professionals and planners.
The report can be downloaded here. The file is in pdf format and is 1.92 MB. [...]
Unfortunately this event has now been cancelled. For more information please contact the organiser at the email address below.
Gig 4 M.E.
Date: Saturday 13th June
Time: 7.30pm
Duration: Approximately 3 hours
Venue: Auchterarder Parish Church, 24 High St, Auchterarder, Perthshire,
PH3 1DF (about an hour from central Edinburgh). The venue is seated.
Tickets: £8 (includes free Luma CD)
A charity gig featuring [...]
Sadly, we have to report the death of edmesh member Alan Lear, who passed away at the end of 2008. A funeral service was held on Tuesday 13th January 2009 and was attended by a number of edmesh members and committee members.
Alan was a writer and regular contributor to edmesh’s newsletter. His humorous articles will [...]
The judicial review into the NICE guidelines for CFS/ME begins today. These are proposed guidelines for the care and treatment of ME sufferers in England and Wales. (Scotland will be getting its own CFS/ME guidelines later in the year.)
The NICE guidelines were branded unfit for purpose by a number of ME charities, chiefly for their [...]
