edmesh were there at the launch of Nasim Marie Jafry’s novel The State of Me last night. There was a great turnout of people to hear read an extract from the beginning of the book and answer questions about it. She explained that it had taken her 10 years to write – because, as an [...]
There still appears to be no one available to take a lead on ME/CFS for Lothian Health – as at mid August. This means that the Report based on our patient survey questionnaires has still not been published. We are very concerned that the important information and recommendations in the Report should not be buried. [...]
Fibromyalgia and ME expert Dr Jacob Teitelbaum of Maryland, USA will be giving a free talk in Glasgow as part of his visit to the UK. Date: Thursday 21st August Time: 1.30pm Venue: The Pearce Institute, 840 860 Govan Road, Govan, Glasgow (tel: 0141 445 6007) Dr Teitelbaum, who suffered from CFS and Fibromyalgia himself, [...]
Nasim Marie Jafry will be launching and signing copies of her debut novel The State of Me at Waterstones, George Street, Edinburgh, on Wednesday 20 August. The event begins at 7.30pm. Tickets are free, available from the branch or by calling 0131 225 3436. The novel follows the adventures of Helen, a student who becomes [...]
edmesh is always on the lookout for volunteers. The management committee itself, is made up of volunteers, some have ME and others are carers or relatives of people with ME. We need volunteers for all kinds of things. We need people to help us during ME Awareness Raising Week, when we set up an information [...]
We are based in Edinburgh, but we have members across the Lothians and also throughout Scotland and in England. Although our core activities such as open meetings, informal social get-togethers and social events/outings are based in and around Edinburgh, anyone is welcome to join regardless of where you live. Although most of our members have [...]
I couldn’t find the right words to name certain objects. It was as if my brain was on pause…
I developed ME in 1993 after a bout of Chinese Flu – I had never had flu before nor had I ever had a problem with my health and was rarely off sick from work. This was like being hit by a truck – followed by several steam rollers – with spikes on…
As chosen by support groups associated with 50 new multidisciplinary teams in England.
