Edinburgh M.E. Self help Group

Unfortunately this event has now been cancelled. For more information please contact the organiser at the email address below.
Gig 4 M.E.
Date: Saturday 13th June
Time: 7.30pm
Duration: Approximately 3 hours
Venue: Auchterarder Parish Church, 24 High St, Auchterarder, Perthshire,
PH3 1DF (about an hour from central Edinburgh). The venue is seated.
Tickets: £8 (includes free Luma CD)
A charity gig featuring [...]

Unfortunately, edmesh have learned today (Friday) that Dr Jonathan Kerr is ill with flu and will be unable to travel to Edinburgh to give his talk on Saturday 9 May.
We have therefore decided to cancel Saturday’s open meeting at 2pm at the Lammermuir Hall, St Cuthbert’s Church.
We apologise for the short notice of this announcement [...]

This event is dedicated to the memory of our dear friend, Alan Lear. The outing will be free to edmesh members, thanks to a donation by Debbie Balsle

ME Awareness Week in Edinburgh kicks off with Dr Jonathan Kerr’s talk to edmesh at St Cuthbert’s Church on Saturday 9th May.
On Tuesday 12th May (International ME Awareness Day) there will be a Reception at the Scottish Parliament at which it is hoped to launch the Good Practice Statement for GPs, as well as the [...]

THIS EVENT HAS BEEN CANCELLED. SEE HERE FOR FULL DETAILS.
Speaker: Dr Jonathan R Kerr, Sir Joseph Hotung Clinical Senior Lecturer in Inflammation, Hon. Consultant in Microbiology, St George’s University of London
Topic: “Genomic Subtypes of CFS/ME”
Date: Saturday 9th May 2009
Time: 2pm (doors open 1.30pm)
Venue: Lammermuir Hall, St Cuthbert’s Church, 5 Lothian Road, Edinburgh

ALL WELCOME. Admission Free.
Buses [...]

Date: 23 April 2009
Time: 1pm
Venue: National Musuem of Flight, East Fortune Airfield, East Lothian, EH39 5LF
Cost: edmesh members £4.50, non-members £5.85
Join us for a visit to the National Musuem of Flight on 23 April, which includes The Concorde Experience exhibition. The Museum is situated 20 miles east of Edinburgh, off the B1347. We hope to [...]

For April and May, our regular monthly cafe get-togethers on the first Wednesday of the month will be held at a new venue. (Note that from June through the summer, we will revert to our usual venue of the Holyrood Palace cafe.)
Venue: Debenhams 4th floor cafe, Princes Street, Edinburgh
Time: 14:30-16:00,  1st April 2009 and 6 [...]

Dr Jonathan Kerr will be the guest speaker at edmesh’s Open Meeting on Saturday 9 May - this is just before the start of ME Awareness Week on 12 May 2009. This is free to members and non-members alike. Further details will be added to the Events page nearer the time.
Holding the title of Sir [...]

Sadly, we have to report the death of edmesh member Alan Lear, who passed away at the end of 2008. A funeral service was held on Tuesday 13th January 2009 and was attended by a number of edmesh members and committee members.
Alan was a writer and regular contributor to edmesh’s newsletter.  His humorous articles will [...]

The judicial review into the NICE guidelines for CFS/ME begins today.  These are proposed guidelines for the care and treatment of ME sufferers in England and Wales. (Scotland will be getting its own CFS/ME guidelines later in the year.)
The NICE guidelines were branded unfit for purpose by a number of ME charities, chiefly for their [...]