Katie MacLaren has successfully completed the half marathon in the Great Scottish Run in 2 hours 21 mins. Katie was running on behalf of edmesh – you can still contribute via the donate page. edmesh will let Katie know how much her run has raised from donations.
UNFORTUNATELY, THIS EVENT HAS BEEN CANCELLED. IF YOU BOUGHT A TICKET, YOU WILL BE CONTACTED BY THE HUB FOR A REFUND. PLEASE IGNORE THE INFORMATION BELOW! The Edinburgh Festival of Politics is staging a free event on Thursday 20 August which may be of interest. Event title: Past Present & Future – The Developing Role [...]
The Scottish Public Health Network is currently undertaking a needs assessment for CFS/ME, and would like to hear from anyone suffering from the condition. The main aims of the project are to: Establish the incidence of CFS/ME in Scotland Describe what services are currently available for CFS/ME sufferers and their effectiveness Ascertain any new services [...]
The Believe in ME report has now been published by NHS Lothian. A printed version has been sent out to everyone on the edmesh mailing list, and it has also been distributed by Lothian Health to health professionals and planners. The report can be downloaded here. The file is in pdf format and is 1.92 [...]
Unfortunately this event has now been cancelled. For more information please contact the organiser at the email address below. Gig 4 M.E. Date: Saturday 13th June Time: 7.30pm Duration: Approximately 3 hours Venue: Auchterarder Parish Church, 24 High St, Auchterarder, Perthshire, PH3 1DF (about an hour from central Edinburgh). The venue is seated. Tickets: £8 [...]
Sadly, we have to report the death of edmesh member Alan Lear, who passed away at the end of 2008. A funeral service was held on Tuesday 13th January 2009 and was attended by a number of edmesh members and committee members. Alan was a writer and regular contributor to edmesh‘s newsletter. His humorous articles [...]
The judicial review into the NICE guidelines for CFS/ME begins today. These are proposed guidelines for the care and treatment of ME sufferers in England and Wales. (Scotland will be getting its own CFS/ME guidelines later in the year.) The NICE guidelines were branded unfit for purpose by a number of ME charities, chiefly for [...]
The Disablement Income Group Scotland (DIG), based at the Shore in Edinburgh, has had to close down due to lack of funding following changes in grant allocations. DIG has operated as a charity offering advice on welfare benefits and all sorts of other financial matters for disabled people for many years. Unfortunately they have been [...]
A list of sites set up by ME sufferers and doctors with information on ME.
I have learned now that I must not push myself to do everything at once. I must take each day as it comes and be grateful…
