ME support sites by individuals

By • Oct 2nd, 2008 • Category: Useful Links

Note: These sites are provided for information only; edmesh does not endorse any opinions expressed in them.

General ME websites

M.E. Support – http://www.mesupport.co.uk

Louise Sargent’s site features information on ME and related conditions, and articles on managing different aspects of the illness.

Fighting Fatigue – http://www.fightingfatigue.org/

Sandy Robinson’s site features a blog with lots of information on ME and other chronic illnesses.

Chronic Fatigue Syndrome: an invisible illness – http://www.chronicfatiguesyndromesupport.me.uk

Linda Sheppard has created a very personal site based on her experiences as an ME sufferer, writing about her struggle to be diagnosed, coping with symptoms and managing employment. There is also an online forum on this site.

Severe ME

Surviving Severe ME - www.survivingsevereme.com

Claire Wade’s Surviving Severe ME website lists tips for severe ME sufferers and their carers, which can also be downloaded as a pdf e-book (see ‘The Book’ link on the site).

A Hummingbird’s Guide to M.E. – http://www.ahummingbirdsguide.com/index.htm

Jodi Bassett explains the reality of living with severe ME. This comprehensive website features advice on diagnosis and treatment, suggestions for carers, medical research evidence and audio/video about M.E.

Websites by doctors

Dr Myhill’s site – http://www.drmyhill.co.uk

Dr Sarah Myhill is a specialist GP who treats CFS. See the section on ‘Fatigue’ on her site. Also, an e-book on CFS/ME is available here: http://www.drmyhill.co.uk/article.cfm?id=362

Dr Mason Brown’s site - http://www.cfs-me.co.uk

Dr David Mason Brown is a former ME sufferer who is now retired from seeing new patients but you can read about his treatment protocols on his website.

Dr Midgley’s site (Overton Studios Trust) – http://www.ostrust.co.uk

Dr Michael Midgley is an ME sufferer who has managed to bring his illness under control. He lives and works in Colwyn Bay, Wales.

Dr Enlander’s site – http://www.enlander.com

Dr Derek Enlander lives and works in New York. He spoke about his treatment of ME patients at ME Research UK’s biomedical conference in 2008.

Dr Teitelbaum’s site - http://www.endfatigue.com

American Dr Jacob Teitelbaum has developed the SHINE protocol to treat CFS and Fibromyalgia, both of which he suffered and recovered from.

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