Edinburgh M.E. Self help Group

Research

There are many exciting developments now happening in research, especially in biomedical research.

Organisations supporting specialist M.E./CFS research:

M.E Research UK

The Gateway, North Methven Street, Perth PH1 5PP
Tel: 01738 451234
Email: meruk@pkavs.org.uk
Website www.meresearch.org.uk

CFS Research Foundation

2 The Briars, Sarratt, Rickmansworth, Herts. WD3 6AU
Website www.cfsrf.com

Invest in ME

Email: info@investinme.org
Website www.investinme.org

International Association for CFS/ME (based in US)

Website http://www.iacfsme.org/

Medical Research Council

Website: www.mrc.ac.uk

Edinburgh is currently one of the centres for the MRC funded PACE research trial: Pacing, Activity and Cognitive Behavioural Therapy – a randomised Evaluation.

Reports and Guidelines

Chief Medical Officer’s Working Group on CFS/M.E. 2002
www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_4064840

Scottish Chief Medical Officer’s Short Life Working Group on CFS/M.E. 2003
www.sehd.scot.nhs.uk/mels/HDL2003_02.pdf

Canadian Consensus Document Overview – Clinical Case Definition and Guidelines for Medical Practitioners 2003
www.mefmaction.net/documents/me_overview.pdf

South Australia ME/CFS Management Guidelines for General Practitioners 2004
www.sacfs.au/download/guidelines.pdf

US Centers for Disease Control – CFS Toolkit 2006
www.cdc.gov/cfs/toolkit.htm

Action for M.E Guidance on the Management of CFS/M.E.
www.afme.org.uk/res/img/resources/GP%20Guide%20Apr%2008.pdf

Evidence Based Guideline for the Management of CFS/ME in Children and Young People (2004)
www.rcpch.ac.uk/doc.aspx?id_Resource=1480